Posts in Family
Our Decision to Have a Third Baby

“Do we need these baby gates?” I asked Ed.

“Yeah hun, hold on to them because we will want to put up a gate to keep the little one from wandering out of their room,” he said.

Weird. Little one wandering. It seems like such a foreign concept. After he said that, I couldn’t help but think…is this child going to walk?

Read More
Maxwell Turns TWO And The Start of Max Squad

MAX TURNED TWO LAST WEEK!! (oops, this blog post is a little late!) Max’s favorite show is Mickey Mouse Clubhouse, so, of course we did a Mickey themed party!

The day before the party, my husband, aunt, and myself pinterested…hard! We painted Mickey and Minnie pumpkins, made black pom-poms with ears, drew and painted Mickey garland with Maxwell’s name on it, and made a Mickey paper chain. It was too cute! I forgot to mention, my husband had the most tedious job of all…cutting small, white circles from labels for “Mickey’s buttons.”

I made the cupcakes from a box, and whipped up some icing to make Mickey cupcakes. I LOVE bakery cupcakes, but I procrastinated and had to DIY the night before!

This birthday was different for me as a mom.

Read More
Maxwell's Diagnosis

The past few months have been a whirlwind! We have sold our house (after 3 years of trying), moved to a new city, established a new therapy team for Max, and enrolled our oldest in preschool. Several months ago, Ed, myself, and Maxwell had our blood taken for a detailed genetic test. The results came in with an actual diagnosis for Max. 

Read More
When Your Child Doesn't Qualify for Social Security

Having a child with special needs does not discriminate based on your income level.

It just doesn’t.

However, if you are not considered low income by the Social Security Administration, your road to obtaining assistance on a federal and state level is MUCH more difficult. “You don’t qualify” will be the most frequent phrase you encounter, and you will believe that, but I’m here to tell you there is another way in West Virginia.

Read More
Cortical Visual Impairment & Seeing West Virginia in a Positive Light

The very first diagnosis Maxwell received was Cortical Visual Impairment. I watched Max lay on a blanket for the first 7 months of his life only looking to his left side, crossing his eyes when he tried to focus, staring at the light, and shaking his head back and forth when he became overstimulated. I took notice that all of his toys were exactly as I had placed them on his blanket. Not one had moved. Not one had been picked up. Not one had been played with.

Read More